{"id":21224,"date":"2021-02-26T15:52:03","date_gmt":"2021-02-26T15:52:03","guid":{"rendered":"https:\/\/convosphere.com\/?page_id=21224"},"modified":"2023-01-18T13:09:26","modified_gmt":"2023-01-18T13:09:26","slug":"whitepaper-optimise-your-rare-disease-strategy-with-social-data-insights-download","status":"publish","type":"page","link":"https:\/\/convosphere.com\/pt-pt\/whitepaper-optimise-your-rare-disease-strategy-with-social-data-insights-download\/","title":{"rendered":"[Whitepaper] Optimise your Rare Disease Strategy with Social Data Insights"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row content_placement=&#8221;middle&#8221; enable_gradient=&#8221;yes&#8221; css=&#8221;.vc_custom_1614345157469{padding-top: 150px !important;padding-bottom: 150px !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}&#8221; gradient_bg=&#8221;-webkit-linear-gradient(65deg, rgb(0, 163, 178) 0%, rgb(39, 104, 158) 100%)&#8221; responsive_css=&#8221;padding_top_medium:140px|padding_bottom_medium:170px&#8221;][vc_column width=&#8221;2\/3&#8243; enable_content_animation=&#8221;yes&#8221; ca_init_scale_x=&#8221;1&#8243; ca_init_scale_y=&#8221;1&#8243; ca_init_scale_z=&#8221;1&#8243; ca_init_opacity=&#8221;0&#8243; ca_an_scale_x=&#8221;1&#8243; ca_an_scale_y=&#8221;1&#8243; ca_an_scale_z=&#8221;1&#8243; ca_an_opacity=&#8221;1&#8243; ca_duration=&#8221;1200&#8243; ca_delay=&#8221;150&#8243; ca_init_translate_y=&#8221;81&#8243; ca_init_rotate_z=&#8221;2&#8243; css=&#8221;.vc_custom_1614345175777{margin-top: -50px !important;padding-right: 100px !important;}&#8221;]<style>.ld_fancy_heading_69ec8211e9296 h1{color:rgb(255, 255, 255);}.ld_fancy_heading_69ec8211e9296 .lqd-highlight-inner{height:0.275em;bottom:0px;}<\/style><div class=\"ld-fancy-heading ld_fancy_heading_69ec8211e9296\">\n\t<h1 class=\"lqd-highlight-underline lqd-highlight-grow-left h1\" data-fittext=\"true\" data-fittext-options='{\"compressor\":0.5,\"maxFontSize\":\"currentFontSize\",\"minFontSize\":\"35\"}' data-split-text=\"true\" data-custom-animations=\"true\" data-ca-options='{\"triggerHandler\":\"inview\",\"animationTarget\":\".lqd-lines .split-inner\",\"duration\":700,\"delay\":100,\"easing\":\"easeOutQuint\",\"direction\":\"forward\",\"initValues\":{\"scale\":1},\"animations\":{\"scale\":1}}' data-split-options='{\"type\":\"lines\"}'><span class=\"ld-fh-txt\"> Optimise your Rare Disease Strategy with Social Data Insights<\/span><\/h1><\/div><style>.ld_fancy_heading_69ec8211e9c1f p{color:rgb(255, 255, 255);}.ld_fancy_heading_69ec8211e9c1f .lqd-highlight-inner{height:0.275em;bottom:0px;}<\/style><div class=\"ld-fancy-heading ld_fancy_heading_69ec8211e9c1f\">\n\t<p class=\"lqd-highlight-underline lqd-highlight-grow-left\" ><span class=\"ld-fh-txt\"> <span style=\"font-weight: 400;font-size: 21px\">It\u2019s time to transform the Rare Disease space by giving key stakeholders a voice \u2013 and listening. <\/span><\/p>\n<p><span style=\"font-weight: 400;font-size: 21px\">Download a free copy of our whitepaper to learn more.<\/span><\/span><\/p><\/div><style>.ld_spacer_69ec8211ea24c{height:32px;}<\/style>\n<div class=\"ld-empty-space ld_spacer_69ec8211ea24c\"><span class=\"liquid_empty_space_inner\"><\/span><\/div><style>.ld_button_69ec8211ea42b.btn-icon-solid .btn-icon{background:rgb(33, 104, 156);}.ld_button_69ec8211ea42b.btn-icon-circle.btn-icon-ripple .btn-icon:before{border-color:rgb(33, 104, 156);}.ld_button_69ec8211ea42b{color:rgb(255, 255, 255);border-color:rgb(33, 104, 156);font-size:31 !important;}.ld_button_69ec8211ea42b:hover{background-color:rgb(33, 104, 156);border-color:rgb(33, 104, 156);}.ld_button_69ec8211ea42b .btn-gradient-bg-hover{background:-webkit-linear-gradient(to right, rgb(33, 104, 156) 0%, rgb(33, 104, 156) 100%);background:linear-gradient(to right, rgb(33, 104, 156) 0%, rgb(33, 104, 156) 100%);}.ld_button_69ec8211ea42b .btn-gradient-border defs stop:first-child{stop-color:rgb(33, 104, 156);}.ld_button_69ec8211ea42b .btn-gradient-border defs stop:last-child{stop-color:rgb(33, 104, 156);}.ld_button_69ec8211ea42b:hover .btn-gradient-border defs stop:first-child{stop-color:rgb(33, 104, 156);}.ld_button_69ec8211ea42b:hover .btn-gradient-border defs stop:last-child{stop-color:rgb(33, 104, 156);}<\/style><a href=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/The-Social-Insights-for-Rare-Diseases.pdf\" target=\"_blank\" class=\"btn btn-default btn-lg circle btn-bordered border-thin btn-gradient ld_button_69ec8211ea42b vc_custom_1614373694700\">\n\t<span>\n\t\t\n\t\t\t\t\t<span class=\"btn-txt\">Download Whitepaper<\/span>\n\t\t\t\n\t\t<span class=\"btn-gradient-bg btn-gradient-bg-hover\"><\/span>\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xml:space=\"preserve\" class=\"btn-gradient-border\" width=\"100%\" height=\"100%\">\n\t\t\t      <defs>\n\t\t\t        <linearGradient id=\"svg-border-69ec8211ea98e\" x1=\"0%\" y1=\"0%\" x2=\"100%\" y2=\"0%\">\n\t\t\t          <stop offset=\"0%\" \/>\n\t\t\t          <stop offset=\"100%\" \/>\n\t\t\t        <\/linearGradient>\n\t\t\t      <\/defs>\n\t\t\t      <rect x=\"0.5\" y=\"0.5\" rx=\"17%\" ry=\"50%\" width=\"100%\" height=\"100%\" stroke=\"url(#svg-border-69ec8211ea98e)\"\/>\n\t\t\t    <\/svg>\t<\/span>\n<\/a>\n<style>.ld_spacer_69ec8211eaa04{height:32px;}<\/style>\n<div class=\"ld-empty-space ld_spacer_69ec8211eaa04\"><span class=\"liquid_empty_space_inner\"><\/span><\/div>[\/vc_column][vc_column width=&#8221;1\/3&#8243;]<div id=\"ld_images_group_container_69ec8211eaba0\" class=\"liquid-img-group-container ld_images_group_container_69ec8211eaba0\"  >\n\t<div class=\"liquid-img-group-inner\">\n\t\t<div id=\"ld_images_group_element_69ec8211eadb6\" class=\"liquid-img-group-single ld_images_group_element_69ec8211eadb6\" >\n\t\n\t\t\n\t<div class=\"liquid-img-group-img-container\">\n\t\t\n\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"liquid-img-container-inner\" >\n\t\t\t<figure ><img decoding=\"async\" width=\"756\" height=\"1073\" src=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/Whitepaper-front-page-2.jpg\" class=\"attachment-full size-full\" alt=\"front page rare diseases report\" srcset=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/Whitepaper-front-page-2.jpg 756w, https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/Whitepaper-front-page-2-211x300.jpg 211w, https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/Whitepaper-front-page-2-721x1024.jpg 721w\" sizes=\"(max-width: 756px) 100vw, 756px\" \/><\/figure>\t\t\t\t\t<\/div><!-- \/.liquid-img-container-inner -->\n\t\t\n\t<\/div><!-- \/.liquid-img-group-content -->\n<\/div><!-- \/.liquid-img-group-single -->\n\t\n\t<\/div><!-- \/.liquid-img-group-inner -->\n<\/div><!-- \/.liquid-img-group-container -->[\/vc_column][\/vc_row][vc_row css=&#8221;.vc_custom_1613133180917{margin-top: -100px !important;padding-bottom: 60px !important;}&#8221; el_id=&#8221;form&#8221;][vc_column enable_column_shadowbox=&#8221;yes&#8221; css=&#8221;.vc_custom_1600780868760{padding-top: 5% !important;padding-right: 5% !important;padding-bottom: 5% !important;padding-left: 5% !important;background-color: #ffffff !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;border-radius: 5px !important;}&#8221; column_box_shadow=&#8221;%5B%7B%22y_offset%22%3A%2250px%22%2C%22blur_radius%22%3A%2250px%22%2C%22spread_radius%22%3A%225px%22%2C%22shadow_color%22%3A%22rgba(0%2C%200%2C%200%2C%200.05)%22%7D%5D&#8221;][vc_row_inner content_placement=&#8221;middle&#8221;][vc_column_inner width=&#8221;7\/12&#8243; responsive_css=&#8221;margin_bottom_medium:0px&#8221; css=&#8221;.vc_custom_1613133385207{margin-bottom: 32px !important;}&#8221;]<style>.ld_fancy_heading_69ec8211eb28e h2{font-size:40px;}.ld_fancy_heading_69ec8211eb28e .lqd-highlight-inner{height:0.275em;bottom:0px;}<\/style><div class=\"ld-fancy-heading ld_fancy_heading_69ec8211eb28e\">\n\t<h2 class=\"lqd-highlight-underline lqd-highlight-grow-left\" ><span class=\"ld-fh-txt\"> Discover how social listening can impact your Rare Disease strategy and increase commercial success<\/span><\/h2><\/div>[vc_separator color=&#8221;custom&#8221; align=&#8221;align_left&#8221; border_width=&#8221;2&#8243; accent_color=&#8221;#39b9bf&#8221;][vc_column_text css=&#8221;.vc_custom_1614423485667{margin-bottom: 1.5em !important;border-left-width: 2px !important;padding-top: 30px !important;padding-right: 30px !important;padding-bottom: 30px !important;padding-left: 30px !important;background-color: #f3f5f8 !important;border-left-color: #39b9bf !important;border-left-style: solid !important;}&#8221;]<strong><span style=\"font-size: 18px;\">In support of Rare Disease Day, our new <a href=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/The-Social-Insights-for-Rare-Diseases.pdf\" target=\"_blank\" rel=\"noopener nofollow\">whitepaper<\/a> illuminates how actionable social insights through social listening can fill in the real-world gaps where clinical trials and traditional research methods fall short.<\/span><\/strong>[\/vc_column_text][vc_empty_space height=&#8221;10px&#8221;][vc_column_text]With over 7,000 identified rare diseases, it is estimated that at least 1 in 17 people are living with some form of rare health condition. Alarmingly, there is no cure for at least 90% of these diseases.<\/p>\n<p>So, what is preventing pharmaceutical companies from innovating within this therapeutic area?<\/p>\n<p>A key struggle companies face is lack of available data. Since the number of patients with each rare disease is so small, there are logistical difficulties at every step of the drug lifecycle \u2013 from designing clinical trials and recruiting participants, to employing effective marketing strategies.<\/p>\n<p>Fortunately, there is a simple solution to overcoming these challenges: <em>h<\/em><em>arnessing actionable insights through social data. <\/em>Download a free copy of our whitepaper to learn how social listening can impact your Rare Disease strategy and increase commercial success.[\/vc_column_text][\/vc_column_inner][vc_column_inner width=&#8221;5\/12&#8243; bg_position=&#8221;center bottom&#8221;]<style>.ld_spacer_69ec8211eb7e5{height:32px;}<\/style>\n<div class=\"ld-empty-space ld_spacer_69ec8211eb7e5\"><span class=\"liquid_empty_space_inner\"><\/span><\/div>[vc_single_image image=&#8221;21248&#8243; img_size=&#8221;large&#8221; alignment=&#8221;center&#8221; style=&#8221;vc_box_rounded&#8221;][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row][vc_row content_placement=&#8221;middle&#8221; css=&#8221;.vc_custom_1613133323410{padding-top: 30px !important;padding-bottom: 80px !important;}&#8221;][vc_column offset=&#8221;vc_col-md-6 vc_hidden-sm vc_hidden-xs&#8221;]<div id=\"ld_images_group_container_69ec8211eb95e\" class=\"liquid-img-group-container ld_images_group_container_69ec8211eb95e\"  >\n\t<div class=\"liquid-img-group-inner\">\n\t\t<style>@media (min-width: 992px) { .ld_images_group_element_69ec8211ebb54 {margin-left:-50% !important;  }  } <\/style><div id=\"ld_images_group_element_69ec8211ebb54\" class=\"liquid-img-group-single ld_images_group_element_69ec8211ebb54\" data-shadow-style=\"4\" data-roundness=\"6\" data-inview=\"true\" data-animate-shadow=\"true\" data-reveal=\"true\" data-reveal-options='{\"direction\":\"lr\",\"bgcolor\":\"\",\"delay\":\"\"}'>\n\t\n\t\t\n\t<div class=\"liquid-img-group-img-container\">\n\t\t\n\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"liquid-img-container-inner\" >\n\t\t\t<figure ><img decoding=\"async\" width=\"1076\" height=\"740\" src=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/banner2-e1614863255695.jpg\" srcset=\"https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/banner2-e1614863255695-300x206.jpg 300w, https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/banner2-e1614863255695-1024x704.jpg 1024w, https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/banner2-e1614863255695-768x528.jpg 768w, https:\/\/convosphere.com\/wp-content\/uploads\/2021\/02\/banner2-e1614863255695.jpg 1346w\" class=\"\" alt=\"Rare diseases and social data insights\" \/><\/figure>\t\t\t\t\t<\/div><!-- \/.liquid-img-container-inner -->\n\t\t\n\t<\/div><!-- \/.liquid-img-group-content -->\n<\/div><!-- \/.liquid-img-group-single -->\n\t\n\t<\/div><!-- \/.liquid-img-group-inner -->\n<\/div><!-- \/.liquid-img-group-container -->[\/vc_column][vc_column enable_content_animation=&#8221;yes&#8221; ca_init_scale_x=&#8221;1&#8243; ca_init_scale_y=&#8221;1&#8243; ca_init_scale_z=&#8221;1&#8243; ca_init_opacity=&#8221;0&#8243; ca_an_scale_x=&#8221;1&#8243; ca_an_scale_y=&#8221;1&#8243; ca_an_scale_z=&#8221;1&#8243; ca_an_opacity=&#8221;1&#8243; offset=&#8221;vc_col-md-6&#8243; ca_duration=&#8221;1200&#8243; ca_delay=&#8221;120&#8243; ca_init_translate_x=&#8221;-37&#8243; responsive_css=&#8221;padding_left_medium:5%25&#8243;]<style>.ld_fancy_heading_69ec8211ec26f h2{font-size:40px;}.ld_fancy_heading_69ec8211ec26f .lqd-highlight-inner{height:0.275em;bottom:0px;}<\/style><div class=\"ld-fancy-heading ld_fancy_heading_69ec8211ec26f\">\n\t<h2 class=\"lqd-highlight-underline lqd-highlight-grow-left\" ><span class=\"ld-fh-txt\"> Key questions answered by the whitepaper:<\/span><\/h2><\/div>[vc_column_text]<\/p>\n<ul>\n<li>What are the <strong>key opportunities<\/strong> social data offers in the rare disease space?<\/li>\n<li>What are the <strong>challenges<\/strong> social data poses to Pharma and can these be overcome?<\/li>\n<li>How can social data insights <strong>drive patient-centricity<\/strong>?<\/li>\n<li>What do social data insights add to <strong>patient journey mapping<\/strong>?<\/li>\n<li>How can insights from social listening inform <strong>P<\/strong><strong>harma\u2019s rare disease strategy<\/strong>?<\/li>\n<li>Which rare disease stakeholders can <strong>benefit from actionable social data insights <\/strong>and how?<\/li>\n<li>How can insights from social listening <strong>inform drug development and <\/strong><strong>product positioning<\/strong>?<\/li>\n<\/ul>\n<p>[\/vc_column_text]<style>.ld_spacer_69ec8211ec7db{height:32px;}<\/style>\n<div class=\"ld-empty-space vc_hidden-md vc_hidden-lg ld_spacer_69ec8211ec7db\"><span class=\"liquid_empty_space_inner\"><\/span><\/div>[\/vc_column][vc_column offset=&#8221;vc_hidden-lg vc_hidden-md&#8221;]<div 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